Ethics and Research with Children

Ethics and Research with Children

A Case-Based Approach

Kodish, Eric; Nelson, Robert M.

Oxford University Press Inc

01/2019

344

Dura

Inglês

9780190647254

15 a 20 dias

604

Descrição não disponível.
Chapter 1: Ethics and Research with Children: Introduction to the Second Edition
Eric Kodish and Robert M. Nelson

Chapter 2: Ethical Challenges Related to Participation of Adolescents and Young Adults with Intellectual Disability in Research
Pamela Nathanson, Theodore Schall, and Chris Feudtner

Chapter 3: Ethical Challenges Conducting Pediatric Research in the Era of Scarce Drugs
Yoram Unguru

Chapter 4: Catastrophically ill children, access to unregistered medical interventions and trial recruitment needs: an ethical analysis
Thomas Hartvigsson and Udo Schuklenk

Chapter 5: Ethical Issues in the Neonatal Surfactant, Positive Pressure and Oximetry Randomized Trial
John D. Lantos

Chapter 6: Invasive Placebos, Patient Burdens and Community Advocacy: A Federal Ethics Panel Protocol Review
Donna Snyder, Catherine Lee, Robert Nelson

Chapter 7: When if ever, is it ethical to do research in developing countries that could not be done ethically in developed countries?
Lainie Friedman Ross, MD, PhD

Chapter 8: The Welfare of Children, Research Ethics and the Bucharest Early Intervention Project
Maria Master and Joseph Fins

Chapter 9: Ethical Issues in Genetic Research with Infants: Biospecimen Use and Genome Sequencing
Erin Rothwell and Jeffrey Botkin

Chapter 10: Parental Permission for Neonatal Clinical Trials
Benjamin Wilfond and Anita Shah

Chapter 11: Communication and Decision-Making with Parents and Seriously Ill Children about Phase 1 Research Trials
Melissa K. Cousino, Wynne E. Morrison, and Victoria A. Miller

Chapter 12: Involving Parents and Children in Community Engaged Research: Ethical Considerations
Erin Talati Paquette and Lainie Friedman Ross

Chapter 13: Social Media and Pediatric Research Recruitment
Luke Gelinas and Jennifer Cohn Kesselheim

Chapter 14: Payments for Participation of Children in Research
Douglas S. Diekema

Chapter 15: Clinical innovations near the boundary of viability - the artificial womb
Ryan Antiel and Alan W. Flake

Chapter 16: Synthesis and Concluding Reflections
Robert M. Nelson and Eric Kodish